What kind of cancer is this anyway???????????

Well, we found out today that she may have an even more rare type of cancer than clear cell - possibly rhabdoid. They are not exactly sure this is what it is or what stage yet, but I am prepared for anything at this point. It seems like everyday it gets to be a worse prognosis. Tomorrow we have an MRI and Bone scan, along with a radiation prep., so we should find out more answers regarding staging. If it is in the brain or bones, it is a stage 3 or 4. Type of cancer, apparently still to be determined. I just can't believe they still don't know, but I am glad they are really studying the tissue they removed so we can get the best treatment possible.

We went in to talk to the doctor about getting referred to St. Jude. Not sure where we are on that. By the time we were done talking with the drs., it was too late in the day to get a call in to St. Jude. So, I don't know if they are going to wait until tomorrow afternoon to get more info before calling St. Jude, but I kind of think they need to do it in the morning. It seems like there is a time frame we are working with, at least according to the radiologist who wants to follow exact protocol (treatment should begin within 14 days of surgery). Myself, I don't see what a few extra days is going to hurt. If we do get them to refer us to St. Jude, it might slow the process down, but I think it might be best for Summer to go there. They have not convinced me otherwise although they say the treatment will be the same at both places. Time seems to be of the essence, but it is taking them a long time to determine the exact type of cancer although they are spending a lot of time studying it. Not sure if that sentence makes sense, but my mind is somewhat muddled at this point.

We have to be at the hospital at 6:30 in the morning. Anybody got a spare rooster? LOL I don't think even roosters will be up at that hour. I am anticipating another long day.

I want everyone to know I appreciate all the prayers, comments and phone calls, even if I don't answer them. Sometimes I just have to cut the ringer off because I don't feel like talking. Answering phone calls tends to make my voice start quivering and the tears start flowing. So, don't be offended if you don't catch me on my cell. I am glad to know that so many people care. I really do have some awesome friends and family. As I get more answers and some of the uncertainty goes away, I am sure I will be up for more conversation. Right now, it just seems to be getting worse everyday so I'd rather just let it all out here.

On a different note, I got to watch my 5 1/2 month old grandbaby for a little while this evening while her mommy was visiting her daddy in the hospital. She was so precious and helped to take my mind off of things for a while. Summer also enjoyed seeing her which was another plus.

I hope tomorrow is not as bad as I am expecting. Summer will be put under anesthesia twice. They will have to access her port. I am really dreading that because I know she is going to be freaking out. If only I could come up with a way to make it fun. I'm sure I'll be racking my brain all night. Hopefully, I will get some sleep although I don't feel a bit sleepy right now. Where is that sandman???