The doctor called yesterday afternoon just before five o'clock. I didn't want to ruin everyone's Monday, in case any of you all were having a good one, so I waited until today to post her news. First off, Happy Tuesday! Anyway, she confirmed that the type of kidney cancer is rhabdoid. It looks like we will be staying in town for treatment at this point. We are going to talk to the doctor today about our options. St. Jude is NOT one. I think they are planning on starting treatment Thursday. They want to go ahead and start the chemotherapy at least. They said we can wait as long as the end of the month to start radiation. What a mess.
My daughter, and possibly husband, have the rarest type of kidney cancer in the world???? We are not certain about Clint's, but I would not be surprised. Thank you devil for all the crap in my life right now. He is truly evil, but I know God is on my side. I am trying to lean on His words right now. My dad shared some Bible wisdom with me as I cried on his porch last night. It is reassuring to hear things like God will never leave you. God loves you. God has a plan. I am so scared right now. Tears rolling down my face as I type.
What am I supposed to do now? I know I have to be strong. I know I need to stay positive. There are things I need to let go of. First thing to go is my competition. I just cannot give Summer my all if I do it too. It takes a lot of time and energy to train leaving me exhausted at times like yesterday when I crashed on the couch. I need to give Summer 100% right now because that is what she deserves. I can worry about me later.
So, bring on the Starbucks! I might just have to go through the drive through on the way downtown. Did I mention they have one in the hospital? :) There are always positives in the negatives as my dad reminded me yesterday.
Summer and I have a play date this morning so I am excited to get back home. We may have another one tomorrow if we don't have any appointments scheduled. It is so nice to have friends who care and I really do appreciate you all, even the ones I've never met in person. Knowing that you all are there for us, and praying for us, is very comforting and brings a smile to my face.
Of course, Summer brings the most smiles to my face. She truly does light up my life.
2 years ago
12 comments:
Even though the news isn't great, at least now you know, and it feels better just to know.
Do you know what her regimen is going to look like?
Oh hon..I'm so sorry!!! I'm praying for Summer..praying that she will remain strong through her treatment. These are the times that I always ask why and don't understand why these things happen..I can't imagine what you're going through but know that our hearts are with you each and every day!
Okay...that isn't great news, BUT, they don't think it has spread to her bones or brain, correct? So that is a blessing right there. Do you have a Stage yet?
I'm sorry the news wasn't better, Jennifer. But Summer is a strong little girl and she has a mommy who's there for her no matter what. That's something huge.
Still thinking of all you...
XOXO
Jennifer,
I ready your blog every day! I just want to let you know that I am praying for you guys! Stay strong! I am inspired by you.
Love,
Lindsay
Jennifer, we passed along this info on the prayer chain again last night and our whole body of believers are praying for you all!
God is in control.
Lean on Him, look to Him.
Praying,
Chas and family
I am so sorry to hear the news. I wish I could give you a hug. I know that we don't always know why these things happen, but please have faith that you and your family will get through this. Though the news is hard to handle, you now know exactly what you are facing. And being the strong woman that you are, I know you will be a huge support for your daughter and husband. Know that in the fight you are starting, you are not alone. There are MANY of us out there praying for your beautiful little princess. Lean on God, and all of us and you will get through this. Do you have a caring bridge site yet?? www.caringbridge.com God bless you.
"Be on your guard; stand firm in the faith; be men of courage; be strong."
1 Corinthians 16:12-14
Krystyn
I'm so sorry the news isn't what you wanted to hear, but now that they know, they can fight it. She is so strong and brave, and she has so many people supporting her. She will get through it successfully.
I am so sorry for Summer. But your dad is right there is always a positive to go with the negative. I am glad to see that you are saying strong. Just remember God will see you through it all.
http://www.stjude.org/stjude/v/index.jsp?vgnextoid=dda36e52a83c1110VgnVCM1000001e0215acRCRD&vgnextchannel=85e0bfe82e118010VgnVCM1000000e2015acRCRD&SearchUrl=search_results.jsp&QueryText=rhabdoid
It says here that they do treat Summer's type at St Jude and gives contact info for the MD.
Just remember that God is always in control and He is going to be with you through this all. As mother's we do not know what to do when someone tells us that our baby has cancer, but I found that leaning on God was the only thing that I could do other than being there for my baby. I felt God's presence so much when my son was going through his treatments. I truly feel that my relationship with God grew much stronger through it all. I am praying for Summer and you and your family. I know that everyone thinks St. Jude when a baby has cancer, but the doctor's here in Chattanooga are wonderful too. They treated my son for his entire treatment except for his surgery which he had at Vanderbilt. Please feel free to email me if you ever need to talk.
http://www.wish.org/refer/referral_inquiry_form
This may be something you want for Summer, it is the referral for a Make a wish! I am sure a disney vacation will be much coveted sometime soon for little miss and they really make it awesome.
**Big Hugs** for you and your family~
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