Still on the puny side

Summer slept until almost 8:00 this morning. She had a good night although she kept her fever all night. She got sick at 6:07 a.m., but went right back to sleep afterwards. Today she has been pumped full of meds and platelets. Her platelets were only 6,000 this morning which is really low. They were 80,000 two days ago. So far today she has had a couple of doses of Tylenol, Zantac, Zyrtec, Benadryl, & Cefepime. The two Z drugs were pills which we crushed and put in a spoon of ice cream (separately). She took them okay although she wasn't in the mood for any extra ice cream. She hasn't eaten anything today but a couple of bites of a Snickers bar. The nurse even brought her an orange Popsicle, but she turned it down so it is melting on her food tray.

We did not get a menu for today despite me calling the cafeteria as soon as we got a room yesterday. I also called the nurses station a couple of hours later, but still no menu. So today we are getting nothing she, or I, will want. I guess it is good she is not eating. Of course I already have all her favorite foods waiting just in case she does get hungry - chili, spaghetti, chicken noodle, cheese & crackers. So far she is refusing everything I offer. :( But, I guess that is part of her feeling puny.

Her temperature is still going up and down. It got up to 101.6 last night, and is down to around 100.8 right now. We may be in for the weekend too if it does not stay down. Thankfully, she has not had any loose stools today. That is awesome because I was worried she might get what they call "slick gut" which is no fun at all.

She is curled up beside me on the couch watching Barney (which is where she prefers to be when we are in the room). I prefer the bed, but guess who usually gets her way. Yep, my little girl. This morning I thought she was going to let me go to the gym when her daddy came by, but nope. She said, "But I love you so much." How could I leave when she obviously needs me here? Well, that's easy - I didn't. She has agreed to let me go home for a while when my mom comes in a bit. I guess it is okay to let her have her way right now. She is suffering far more than I am. I am ready for a nice, hot shower and some alone time though. It is so hard to be couped up in this room all day although the snuggle factor is amazing right now.

She has also been rubbing her eyes like crazy since we got to the clinic yesterday morning. Not sure what is up with that, but we keep a wet washcloth close by at all times. It makes me wonder if maybe there is something she is getting that makes her eyes water (at least that is why she says she is rubbing them). Hmmmm.

Her belly is still hurting a lot. That is why they started giving her the Zantac. I hope it helps, but so far she is still complaining about it hurting. I really wish we could figure out why and fix it because I feel completely helpless every time she tells me, "My belly hurts." Sometimes I rub her belly and I'm not sure it really helps, but maybe it does a little. Oh well, I can only do what I can do. The rest is in God's hands, but they seem to be pretty full these days..... Life is so frustrating sometimes!