Summer is filling up her sticker chart quickly. I gave her 5 stickers for getting her port accessed without a fight. I think maybe there are too many spots to be filled (25 total), but if I was more consistent with the sticker giving, it would fill up quickly. Right now we have been working on the same chart for over a month. Of course, she has had her share of treats this month. Lots of mail and packages have come addressed to Summer. I am starting to spread them out rather than giving her multiple packages at once so at she will appreciate the gifts more. I think today she may get a Barbie (her 1st one) if she finishes her sticker chart. A hospital admission will definitely fill her chart up.
I hope we get a big room. That is really what I want most to happen today if we are admitted. It is so nice when you have a little fridge in your room so you don't have to leave the room to go get something to drink or eat. Of course, I'm not going to hold my breath that we will get one. There are a lot of cancer kids so we may not be lucky again this time. It seems like every other visit we have the same room. If the pattern follows, we will be in 318 and I DO NOT like that room. I guess I should just be grateful that I have a little girl and suck it up, but it is really in the back of my mind all the time right now. Oh the dread / anticipation.
Summer is getting a book read to her by a volunteer right now. She loves to be read to. This morning while we were in the waiting room, she got me to climb up in the little playhouse. I don't like to go in there until her name has been called and we have signed the paperwork, but I did anyway. Of course they called her name like three times while we were in there and I never even heard them. LOL. Anyways, I read her a book and a half while we were up there. It was funny because she picked a book that I really liked as a child "Alexander and the horrible, no good, very bad day." The bad thing was, it was in Spanish. She wanted me to read it anyway and she just laughed. I read about half of the book, going on and on in words we neither could understand. But, it made us both smile so that was nice. I really do wish they had it in English. Maybe I'll have to get it from the library. I must get off here. It is my turn to read her a book.
Pray that her counts are up so we can get cycle 2 started. I'm ready for some nighttime snuggling with my baby!!!
*********UPDATED***********
Her counts are only 247 so we are free for the weekend. Looks like it will be a pretty nice one. We are going to enjoy the great outdoors since it is less germy than indoor places. Anyone healthy and up for a trip to the park?? We go back on Monday for another try although we will not be accessing the port unnecessarily. That is NOT fun for Summer or me.
6 comments:
praying for you and that sweet baby!
Your little girl is in my thoughts and prayers as well.
You're such a good mom. I wanted to tell you that. :)
I am so glad to see that her counts are up so she can get her #2 treatment. You are doing a great job on showing patience with her. I glad to see that you are poting and letting us know what is going on. I think it is good therapy for you. You both are in my prayers.
Glad you don't have to stay there for the weekend!!!!!! HOORAY
Keeping you all in my prayers...have a wonderful weekend!
Well, hey...look on the bright side, a free weekend! WooHoo!
I'm sorry to hear her counts aren't up, but I bet by Monday, they will be.
Have a great outdoorsy weekend, my friends.
XOXO
Enjoy your weekend! Hope you can have lots of outdoor time with Summer! And then praying for Monday's report to be good. All in God's time, right? ;)
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