Thursday, April 16, 2009

What other choice do I have?

We are at the dr. office. Summer just had her port accessed and she did a great job! She put up a big fuss at first, but ended up sitting in my lap somewhat relaxed and not having to be restrained or forced to cooperate. YEAH!!! She was not happy when she found out we were coming here today. She started crying shortly after her arrival home from Memaw's. She first noticed I had my shoes on and asked where we were going. She's not one to miss a clue. LOL I told her we were coming here and we would be spending the night if her counts were up. Tears started rolling. Neither one of us want to be here, but what other choice do we have? We could skip the treatment all together, but the odds of the cancer coming back to are too great to go that route. So, we struggle on battling cancer one day at a time. I feel fortunate that we are only having to endure one person receiving this type of treatment rather than two. We could very easily have two patients on meds in our house, but God has shown us some mercy. I am thankful for that.

Summer is filling up her sticker chart quickly. I gave her 5 stickers for getting her port accessed without a fight. I think maybe there are too many spots to be filled (25 total), but if I was more consistent with the sticker giving, it would fill up quickly. Right now we have been working on the same chart for over a month. Of course, she has had her share of treats this month. Lots of mail and packages have come addressed to Summer. I am starting to spread them out rather than giving her multiple packages at once so at she will appreciate the gifts more. I think today she may get a Barbie (her 1st one) if she finishes her sticker chart. A hospital admission will definitely fill her chart up.

I hope we get a big room. That is really what I want most to happen today if we are admitted. It is so nice when you have a little fridge in your room so you don't have to leave the room to go get something to drink or eat. Of course, I'm not going to hold my breath that we will get one. There are a lot of cancer kids so we may not be lucky again this time. It seems like every other visit we have the same room. If the pattern follows, we will be in 318 and I DO NOT like that room. I guess I should just be grateful that I have a little girl and suck it up, but it is really in the back of my mind all the time right now. Oh the dread / anticipation.

Summer is getting a book read to her by a volunteer right now. She loves to be read to. This morning while we were in the waiting room, she got me to climb up in the little playhouse. I don't like to go in there until her name has been called and we have signed the paperwork, but I did anyway. Of course they called her name like three times while we were in there and I never even heard them. LOL. Anyways, I read her a book and a half while we were up there. It was funny because she picked a book that I really liked as a child "Alexander and the horrible, no good, very bad day." The bad thing was, it was in Spanish. She wanted me to read it anyway and she just laughed. I read about half of the book, going on and on in words we neither could understand. But, it made us both smile so that was nice. I really do wish they had it in English. Maybe I'll have to get it from the library. I must get off here. It is my turn to read her a book.

Pray that her counts are up so we can get cycle 2 started. I'm ready for some nighttime snuggling with my baby!!!


Her counts are only 247 so we are free for the weekend. Looks like it will be a pretty nice one. We are going to enjoy the great outdoors since it is less germy than indoor places. Anyone healthy and up for a trip to the park?? We go back on Monday for another try although we will not be accessing the port unnecessarily. That is NOT fun for Summer or me.


lmt1073 said...

praying for you and that sweet baby!

Andrea said...

Your little girl is in my thoughts and prayers as well.

You're such a good mom. I wanted to tell you that. :)

Susie said...

I am so glad to see that her counts are up so she can get her #2 treatment. You are doing a great job on showing patience with her. I glad to see that you are poting and letting us know what is going on. I think it is good therapy for you. You both are in my prayers.

Stephanie said...

Glad you don't have to stay there for the weekend!!!!!! HOORAY

Keeping you all in my prayers...have a wonderful weekend!

Bridgett said...

Well, hey...look on the bright side, a free weekend! WooHoo!

I'm sorry to hear her counts aren't up, but I bet by Monday, they will be.

Have a great outdoorsy weekend, my friends.


ginger said...

Enjoy your weekend! Hope you can have lots of outdoor time with Summer! And then praying for Monday's report to be good. All in God's time, right? ;)