Monday, September 14, 2009

Cycle 7 starts tomorrow

We are in our small (booo!!!) hospital room where we will remain until Friday morning. Summer's counts were up today although I'm not sure what they actually were. I did ask the Dr. today what the 55% meant on the Muga scan. It is the volume of blood that leaves the heart when it contracts. Normal is between 50 & 60% so that is a very good number indeed!!! I told the Dr. that I thought it meant only 55% of her heart wasn't damaged and he was glad I did because he had never thought of it that way since he knows all of the stuff like the back of his hand. He could see where I came up with my deduction and was glad to know for the future that things should be explained a little more for us non-medically educated parents.

We had an awesome week off. It is always good when we get to the end of a cycle because she is feeling good and acting like a normal, healthy kid again. I am sad to see that brightness fade, but hopefully it will take a few days for the chemo to bring her down from her current feel good state. She still complains "my belly hurts" a few times a day. Mostly it is at night or when she is eating or doesn't want to do something. lol I took her off the Zantac a week ago and she still has the same amount of discomfort. No more, no less. I don't see any sense in taking it and no one has disagreed with me so far. I also stopped giving her the allergy med about the same time. She hasn't had any nasal or respiratory problems since then so I assume she doesn't need it. The only home med she is on right now is the Miralax which I will not stop until we are done with chemo. I know she needs it to keep her poop nice and soft.

She has said so many cute things over the past few days, but for the life of me I can't remember them. Oh well. Good thing I have this blog to look back on all the things I did remember when it came time to sit and blog.

She is curled up in the bed now. Not sure a 5:00 p.m. nap is the best thing, but I know she was sleepy. We were in the clinic from 9:15 a.m. until about 3:00 p.m. which does not lend well for an afternoon nap. I hope she still sleeps good tonight and isn't up before the resident gets here in the morning. But, as the saying goes, whatever will be, will be. Please pray that she doesn't have any major reactions to the chemo this week and her heart will remain healthy enough to not require medication for the rest of her life.


Susie said...

My prayers will be will you both this week. Praying things won't be to bad this time.

-*aMaNdA*- said...

i keep her in my prayers also. Its crazzy how much more i learn from the blogs-- then what i have been told. i guess sometimes its just easier to type then talk. I hope that she does ok in the hosp. and hopefully sumthing entertaining happens for u all : ) i knw what being stuck in a hosp room is like ;)

Stephanie said...

Praying for her and you also! Hope this week goes well and she handles everything without having any side effects.

the mol said...

Glad to hear that the heart is still healthy and that counts are good enough for chemo. It's a funny thing--our kids show up to the hospital feeling well and leave feeling sick.

Anonymous said...

I just said my prayer.


Bridgett said...

Always thinking of you guys and sending my brightest, healing blessings. :)


Stephycce said...

Good Luck Summer!!