Monday, September 28, 2009

Another Monday at the clinic

Oh what a weekend! Summer got to camp out with her cousins and had a great time. She got to spend two nights with her Memaw just like she wanted. She has still been eating pretty good despite the mouth sores that showed up over the weekend. Yesterday, she woke up from her nap crying they were hurting so bad. She said she couldn't even swish, but after suffering for a while longer decided she would. She has two different kinds of swishing products and ended up using them both. She has only used one once because she doesn't like it. It is pink and doesn't taste good, but it numbs her mouth I think. After she tried it, she was ready to eat. I hope they go away quickly. I think they usually do so maybe by the end of the week they will all be gone. She hasn't taken her nausea medicine today and has still been eating pretty good. PTL! I have noticed that she has been a little more tired than usual the past few days, but she has not "crashed" like before. I am so thankful she is handling the chemo so well. She got her last shot of Vincristine this morning and only has one more round of chemo to go. I am excited to be at this point, but a little scared too. I know I need to let the fear go and not focus on "what if it comes back?" But, that is easier said than done. This is MY little girl we are talking about and losing her would be devastating. It is all in God's hands though and I just have to have faith that He will bring her through this so she can live a long, healthy life.

We are in the clinic now waiting on blood results (and a hamburger with fries and oatmeal raisin cookies for Summer). She has been on shots for about 10 days. They upped her dose of Neupogen to double what it was before last Thursday. I hope this means her white counts will recover quicker than they have been. I'll be glad to be done with the shots for this cycle because she still cries when she gets them and says "it will bleed." I am not really anxious to get the last chemo underway, but the earliest we could start would be next Tuesday. I highly doubt it will start then, but I have been wrong before. Once or twice. LOL

I guess I'm going to go watch Summer blog some bubbles. She finally learned how to do it today. She has had trouble adn I finally figured out it was because she was holding her lips wrong. Now that she knows to pucker and make a circle with her lips, she is a pro. She got a butterfly tent from Miss Ashley today. I can't wait to go home and set it up. I just hope she will play with her dolls in it, but I am figuring I am going to have to contort my body into some uncomfortable position for at least a little while. Should be fun no matter how it turns out!

*********UPDATE**********

Counts are back. White count is .4 and ANC is 0. Looks like we are stuck inside a few more days since her immunity is nil. She needed blood and platelets. So, she is getting the blood now which started after 3:00 p.m. We will be here until probably 6ish this evening. :( That is a long day at the clinic considering that we were here at 8:55 this morning. Looks like we will miss dinner at Chilis with Memaw & Nanny. Today is the day they donate all proceeds to St. Jude. Maybe we will just get takeout because Summer was wanting a steak last night and it sounds pretty good to me too. Clint brought me some lunch and my laptop so I have not been completely bored sitting here waiting. Summer is napping while she gets blood. Hopefully, she will not start running a fever or anything crazy to warrant another hospital stay this week. A week off would be nice for us both. Of course we have to come back to clinic on Friday for a count check to see if she can come off the shots. I just hope it doesn't turn out to be a long day like today.

3 comments:

Susie said...

Fantastic news about your weekend. Sounds like Summer had a fun time and you and your husband got some alone time. About the tent you are probably going to have to try and squeeze in like I have to for my grandchild. It isn't to bad except it gets stuffy. Good luck this week.

Tracey - Just Another Mommy Blog said...

Hope her counts go up soon...

Bridgett said...

Oh man. :(

I hope things are going better today!

Much love to you all....